My daughter is 26 and has had it since birth. I took her to Boston Childrens Hospital, Yale New Haven and Duke University when she was little. I was determined to find a "cure", which they all told me would never happen. She was made fun of in kindergarten cause her hands looked like she was burned with acid. I was afraid of the steriods they used back than and used them sparingly. The only "control" she has is the use of UV lamps which they also now use on people with other skin conditions. She has never slept through the night cause of itching and if you have to share a bed with her it