Jump to content
Paulding.com

In need of info., support....


Recommended Posts

My SonIL's Mother was diagnosed with MS. She is in her late 50's and was experiencing some major numbness late last week and has been in the hospital since Saturday. Does anyone have experience with MS? I'd just like to get some kind of idea as to what this wonderful family is in for.

 

and yes, I know we aren't Doctors. I just want opinions and experiences with this debilating disease.

Link to post
Share on other sites

No personal experience, but I do know the Shepherd Center has a section that deals with people with MS. See

 

http://shepherdcenter.org/patient-programs/multiple-sclerosis

 

http://shepherdcenter.org/patient-programs/multiple-sclerosis/faq

 

My nephew was there some years back with a head injury and I cannot sing their praises enough. They are FANTASTIC.

Edited by mei lan
Link to post
Share on other sites

No personal experience, but I do know the Shepherd Center has a section that deals with people with MS. See

 

http://shepherdcente...tiple-sclerosis

 

http://shepherdcente...e-sclerosis/faq

 

My nephew was there some years back with a head injury and I cannot sing their praises enough. They are FANTASTIC.

 

Thank you, Sweet Mei! I am going to pass this along to the kids as soon as Mom comes home. I plan to make some meals for them and help in any way I can. They lost their Dad to cancer 2 years ago.

Link to post
Share on other sites

Have a cousin who has MS and lead a normal life. She has to take meds and has good and bad days but with help from the doctors she is really leading a normal life. She still works and is raising to great kids.

 

This makes my heart feel better. Thank you, Drphilofdogs.

Link to post
Share on other sites

My daughter was diagnosed with MS in October.

She is 35. From what I understand,; having MS is very different for each individual.

 

There is a wealth of information available - here are a few of the sites that we found to be the most informative:

 

http://www.nationalmssociety.org/index.aspx

 

http://www.mymsaa.org

 

http://www.multiplesclerosis.com/us/

 

She had a rough few months after her initial symptoms, which included optic neuritis (double vision) and numbness in her leg.

But she is feeling better at the moment and just had her first visit with a wonderful Dr. at the MS Center of Atlanta.

Thanks to the person who messaged me on p.com and recommended her. :)

 

http://www.mscatl.org/

 

Feel free to send me a pm if you'd like more info.

  • Like 2
Link to post
Share on other sites

It definitely varies from person to person....my mom died last year of complications 26 years after diagnosis...was paraplegic within 10 years and quadriplegic for the last 8-10 years of her life. I believe The Postman and TJB have or have had wives who experienced similarly aggressive results after diagnosis. On the other hand you have folks like Montel Williams, or some of the folks people know mentioned in this thread, who live with pain and such but never really lose much function. I guess it's just luck of the draw, really.

 

Given your friend's age, that seems very, very late for a diagnosis (I'm no dr., just seems late) which I would think is good news. She's likely suffered minor symptoms for a very long time and the disease has finally progressed to a point where she knew something serious was wrong. I'd like to think that's a sign she does not have an ultra-aggressive "strain" of MS. While it will still likely be difficult for her in the way of pain, perhaps vision problems, numbness, spasticity, etc., I doubt she's facing paralysis or anything.

 

If there's any questions I can try to answer for you, don't hesitate to PM.

 

 

mrnn

Edited by mrnn
Link to post
Share on other sites

My mom and uncle both died from the severely aggressive type. Both were quads and bedridden. I'm sorry for her diagnosis and that I don't have anything positive to say about quality of life living with MS because neither one of them had any. It was a miserable existence from diagnosis around age 30ish until death.

Link to post
Share on other sites
1386639204[/url]' post='3864864']

My mom and uncle both died from the severely aggressive type. Both were quads and bedridden. I'm sorry for her diagnosis and that I don't have anything positive to say about quality of life living with MS because neither one of them had any. It was a miserable existence from diagnosis around age 30ish until death.

 

That's horrible. I'm sorry Lumak. sad.gif

Link to post
Share on other sites

KRM, has the M.S. attacked any other organs like bladder and bowels? If not, she's lucky. Getting on the right drugs will help slow the progression of the disease. Looking back, I suspect my wife had it for a long time and didn't know it. My heart goes out to you and your family.

Link to post
Share on other sites

THank you all for the info. She was just diagnosed yesterday. There are white spots on her brain. I have no idea what that is. Hubby had already done a bit of research and he said that was more of a sign of MS than cancer, so that made me feel better. I certainly don't want to share anything with the DD and the SIL but want to get as much info. as I can.

 

 

 

Thank mrnn, I will definitely remember you when we get more information from the Dr.

Link to post
Share on other sites

Has she seen a neurologist? They are very good with something like this. They know the brain and that is what it affects. Also I have someone close that has this and he has to take a shot in the am and pm everyday. I believe the white spots are lesions which isn't a good thing. She probably always had it but it progressed some. The less lesions on the brain the better when diagnosed.

 

I have worked with alot of ms patients a while back and the thing is to do the meds and keep active. I know one that was into aerobics and she never showed anymore symptoms since she was diagnosed. Another did water therapy which was very helpful. Some were down for a while and after a while the symptoms would go away. It usually hits men harder then women. This was from what I seen. But never get discouraged if you are down for a while cause it will go away for a time and that is when you work on yourself to keep your limbs and body limber.

 

I feel for your son in law mother. They should have someone that comes by their house to discuss what remedies would be best for her. Hoping for the best. The person close to me said diet and exercise plays a big role in helping it. He would work out alot. Its hard to do when the meds make you tired. His started with losing sight in one eye and then seen a spot in his spine but no one ever could diagnose him except for the neurologist. It took a while a very long time and many trips to different eye doctors to diagnose him. Make sure to ask about taking the shots. I often wondered if it is genetic or not.

  • Like 1
Link to post
Share on other sites

I'm in no means a doctor but I do have a friend who has MS and the first thing she did was cut all aspartame out of her diet. Especially Diet coke. If your s-i-l mom drinks Diet Coke that would be the first thing she should cut out. You can google MS + Aspartame

Link to post
Share on other sites
×
×
  • Create New...