My story is as important as those that have gone years without diagnosis and suffering under debilitating, multiple, health issues.
The word is finally getting out now that famous people have had the disease.
I have tried hard to spread the word here in my home town as much as possible.
Many don't know this but I could have gotten the proper testing and treatment from day one. I did not, which caused a relapse. I suffered many of the symptoms that long term infected people do.
All I had to do was to lie and say I had been anywhere but Georgia. Because of the belief it is not here my classic symptoms down to the bullseye rash were ignored.
Why did I refuse to lie? Because lying would have allowed 1000's of others in the state to be denied testing and treatment. We still have 1000's here being denied!!
I eventually recovered, I have some lasting residual damage to my nervous system. I contracted the disease again last year. I went in as soon as I was sure. I still did not get the treatment needed as protocol said 2 weeks only of doxy would cure me. I expected that, saw another doctor and finally recovered.
Why is my good luck story as important as the horrible condition many patients are in?
Because it is not luck!!!
I was fortunate enough to live in a state that required reporting of health officials that treated patients with Lyme disease. The doctors received education and most importantly the public did.
I can not force mandatory reporting or educating doctors in this state.
What I can do is educate all those in my circle and beg them to share and beg others to share.
Because I have been outspoken I get multiple messages and calls from people that think they have it and can't even get a test, sometimes even with a tick and a bullseye rash.
What is the difference between an educated public and uneducated? In the northeast I would have been tested immediately and placed on antibiotics.
I would have never gotten as sick as I did.
For now my family protects itself when possible by bagging and tagging and freezing the tick.
Why? because the blood test are unreliable, the doctors are uneducated, but you can not deny the bacteria in a tick under the microscope.
I am including a link with additional info. If you suspect you have the disease you can print pages to take to your doctor. If I could I would print the info and place it in the hands of every doctor in this state to stop the needless suffering.
Please take a few minutes to educate yourself on the symptoms. Many never see the tick because it is a nymph the size of a head of a pin. Only about 30% have the rash. The first symptom for many is horrible fatigue. As we share our stories in the forums we are also discovering that many people have different body parts effected first.
Any injury or weak organ is sometimes effected first. Injuries that won't heal or organs that don't respond to treatment such as your respiratory system.
If you could read day after day the suffering I see on the forums you would be horrified at how sick many are after years of denied testing and treatment here in Georgia!