[Stuck In Traffic]

Hi, just wondering if anyone on here has used remicade. My daughter may begin using it (insurance is reviewing the file currently) and I have read so much good and bad about it that I thought I would see if any of you have personal experience with it. If you would rather just pm me with information that is fine. Thanks so much for any first hand information you can provide.

[lumak]

Hi, just wondering if anyone on here has used remicade. My daughter may begin using it (insurance is reviewing the file currently) and I have read so much good and bad about it that I thought I would see if any of you have personal experience with it. If you would rather just pm me with information that is fine. Thanks so much for any first hand information you can provide.

I have 2 friends who suffer from Crohn's disease. Both of their lives have drastically improved from Remicade. They are each infused every 6-12 weeks -- depending on their symptomatology.

Neither one has complained of any side effects -- quite the opposite -- raved about the freedom they are now able to experience.

[busymomof3]

If this is the med I'm thinking of it's primarily an RA drug. I just started taking Plaquenil, an RA med, for Dermatomyositis. I was told the side effects sound bad but only about 2% actually have any of them. Guess what.....I'm in that 2%!! It has been awful for the past 11 days and now I''m told it'll be another two weeks before it completely leaves my system. I would absolutely talk with other people and their experiences. Do your homework and own research. Find out if there is a pattern for the % of those having the side effects.

[moejoefoe]

my husband has been on Remicade since 2006, he now has his infusions every 8 weeks. The cost of the infusion has now jumped from around $8,200 every 8 weeks to over $14,000 every 8 weeks. He has his infusions done at Paulding Memorial Hospital. We are checking to see if we can have him have them somewhere else if it would be any cheaper. Even though we have insurance, that is still way to much. My husband has Crohns disease and has had it since 1997. He 1st started taking Remicade along with another drug that was like a chemo drug, but now he is just on Asacol and Remicade. Good luck to your daughter, the only side effects that I see is he gets really moody before it is time for his infusion

[Stuck In Traffic]

I appreciate everyone's information. I believe this could be a great drug for my daughter since her other one has stopped working. I am just afraid that either the insurance is not going to approve it or they are going to approve it at such a reduced rate that we will not be able to afford it....I almost fainted when I first saw how much the infusions were. Oh My Gosh!

[oliveoil]

Hi. I've been on Remicade for two years and I've never had any side effects. They always want to give me Benadryl before the infusion to ward off anything but I never take it because I just don't like it. It works great for me and my insurance has covered 100% from the beginning. The only part I hate is having to sit in the hospital for 4-5 hours every 8 weeks, however I've made friends with the nurses! Woo Hoo! And honestly that is the only time I ever even remember that I have Crohn's. Good luck to your daughter!